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Construction of a Patient Needs-oriented Follow-up Management System for
Hematologic Malignancies Patients

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Y. Cui, M. Chen, and N. Jin 1
1 Institute of Hematology & Blood Diseases Hospital, Chinese Academy of Medical Sciences & Peking
Union Medical College, School of Nursing, Peking Union Medical College, China

Background: Patients with malignant hematological diseases usually require long follow-up visits,
relevant life guidance, monitoring of medication use and assessment of treatment outcomes.
Patient-driven follow-up management combines patient needs with a follow-up management
model that can be customized to meet the needs of the patient and enable the patient to receive
more tailored health guidance.

Objective: To construct a follow-up management system for patients with malignant hematological
diseases based on patient demand orientation, to provide continuous guidance and assistance for
the self-management and standard treatment of patients with malignant hematological diseases, to
promote patient safety, and to improve the quality of continuity of care.

Methods: A literature review, semi-structured interviews and group discussions were used to initially
develop the content of a follow-up management system for patients with malignant hematologic
diseases. By searching malignant hematologic diseases, hematologic neoplasms, Delphi method,
continuity of care, out-of-hospital health education needs, and quality of life in databases such as
Pub Med and Cochrane Library, including reviews, guidelines, expert consensus, status surveys, and
randomized controlled trials, we can provide a theoretical basis for the development of the entries of
the follow-up management system for hematologic patients and the related dimensions to provide
a theoretical basis. SPSS 26.0 statistical software was used for data analysis.

Results: The follow-up management system consists of four primary indicators, 16 secondary
indicators and 22 tertiary indicators. The management system develops targeted measures based
Poster Presentation Abstracts
on patient needs, including patient health records, disease-related knowledge and self-monitoring. A
diversified medical team is involved to provide comprehensive and personalized medical and nursing
services to patients, implementing specialized guidance and multilevel health education, including
guidance on PICC maintenance and anti-tumor drugs.

Conclusion: The follow-up management system for patients with malignant hematological diseases
is scientific, reliable, specific, comprehensive and systematic, and is of guiding significance for
follow-up management.

Keywords: hematologic malignancies, follow-up management, Delphi method, patient demand orientation

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Correspondence: Yan Cui, Institute of Hematology & Blood Diseases Hospital, Chinese Academy of Medical
Sciences & Peking Union Medical College, School of Nursing, Peking Union Medical College, China
E-mail: sci888@qq.com

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